BFS
Oh, the power of three little letters.
BFS or Benign Fasciculation Syndrome.
Years ago, all BFS would have meant to me was "bull fucking shit." Now, it's the greatest alternative to serious diseases, and tells me that my twitching is for no apparent reason and harmless.
Hallelujah.
Thanks for all of the supportive comments. My pockets are bursting with them and I'm just touched, really I am.
Recap: Thank God I shaved my legs. I had to wear a little paper gown and lay on a table. My neurologist came in with this mustard and brown colored machine (looking like it was manufactured in 1954); he began arranging a number of thick and thin colorful wires and a small metal disc under my legs. I peered at him and he mumbled, "Must figure out which one is the Grounding Wire." GROUNDING WIRE? WTF? FIGURE OUT? I squeezed my eyes shut, dug my fingernails into my palms (must create own pain to focus on so that I remain in control), and it began.
Tuning fork thing to knee. Pop. Tuning fork thing to ankle. Pop. Tuning fork thing to thigh. Pop. Etc. It was the most harmless experience I've ever had. A trip to the dentist is worse. The gynecologist is worse. Eyebrow waxing, I must insist, is worse. It didn't even feel like a shock or a funny bone wound. It felt like it does when the doctor checks your reflexes with the hammer. Just a a litle jump and a pop.
So, I got cocky. I thought: either this is really easy or I am one tough broad. My neurologist then said, "Okay, that's it. Now time for phase two." He held up two fingers. "I'll be back with the needle."
I sat up. "I didn't prepare myself for needles."
He said, "Phase two. Just a little needle. Nothing to it," and disappeared.
I lay there waiting on that paper covered table, the paper making a crinkling sound from my flippin' shaking, and considered the irony of this; that yes, indeed, I was about to have an EMG, just like I described in the blog earlier. Just like Lou and I joked about. Ten minutes later, my neurologist comes back in, holding a little packet with a needle. "Just a little needle. Only hurts for a second."
So, we do the EMG and it actually doesn't hurt either. Like little mosquito bites all over the body.
DIAGNOSIS: No signs of MS or ALS. No signs of pinched nerve. Mild carpal tunnel in the right hand ("no surgery--just means your a hard worker"). Benign Fasciculation Syndrome.
We then spent five minutes discussing the Bush Administration's decision to relinquish Port managment to a UAE company. My neurologist thought that this was very funny, and I kept shaking my head, wondering how I could have missed this.
I took myself to lunch at Chili's, and later, had my eyebrows waxed.
I can definitively say that the eyebrow waxing was the most unpleasant part of my day.
BFS or Benign Fasciculation Syndrome.
Years ago, all BFS would have meant to me was "bull fucking shit." Now, it's the greatest alternative to serious diseases, and tells me that my twitching is for no apparent reason and harmless.
Hallelujah.
Thanks for all of the supportive comments. My pockets are bursting with them and I'm just touched, really I am.
Recap: Thank God I shaved my legs. I had to wear a little paper gown and lay on a table. My neurologist came in with this mustard and brown colored machine (looking like it was manufactured in 1954); he began arranging a number of thick and thin colorful wires and a small metal disc under my legs. I peered at him and he mumbled, "Must figure out which one is the Grounding Wire." GROUNDING WIRE? WTF? FIGURE OUT? I squeezed my eyes shut, dug my fingernails into my palms (must create own pain to focus on so that I remain in control), and it began.
Tuning fork thing to knee. Pop. Tuning fork thing to ankle. Pop. Tuning fork thing to thigh. Pop. Etc. It was the most harmless experience I've ever had. A trip to the dentist is worse. The gynecologist is worse. Eyebrow waxing, I must insist, is worse. It didn't even feel like a shock or a funny bone wound. It felt like it does when the doctor checks your reflexes with the hammer. Just a a litle jump and a pop.
So, I got cocky. I thought: either this is really easy or I am one tough broad. My neurologist then said, "Okay, that's it. Now time for phase two." He held up two fingers. "I'll be back with the needle."
I sat up. "I didn't prepare myself for needles."
He said, "Phase two. Just a little needle. Nothing to it," and disappeared.
I lay there waiting on that paper covered table, the paper making a crinkling sound from my flippin' shaking, and considered the irony of this; that yes, indeed, I was about to have an EMG, just like I described in the blog earlier. Just like Lou and I joked about. Ten minutes later, my neurologist comes back in, holding a little packet with a needle. "Just a little needle. Only hurts for a second."
So, we do the EMG and it actually doesn't hurt either. Like little mosquito bites all over the body.
DIAGNOSIS: No signs of MS or ALS. No signs of pinched nerve. Mild carpal tunnel in the right hand ("no surgery--just means your a hard worker"). Benign Fasciculation Syndrome.
We then spent five minutes discussing the Bush Administration's decision to relinquish Port managment to a UAE company. My neurologist thought that this was very funny, and I kept shaking my head, wondering how I could have missed this.
I took myself to lunch at Chili's, and later, had my eyebrows waxed.
I can definitively say that the eyebrow waxing was the most unpleasant part of my day.
15 Comments:
happy to hear all is good cate
Oh, wow, I'm so happy to hear everything's okay and the procedure wasn't bad!
Hey~
"Thank-you God."
Glad you had good results. Bet you and your family are relieved. Isn't it true...like Franklin D. Roosevelt said "That we have nothing to fear but fear itself"!!!!!
Yay Cate! I day in which eyebrow waxing is the worst that that happens to you is a Good Day, IMO.
Plus I like the word fasciculation.
Cathie, I am soooo glad that the procedure wasn't terribly awful and that you finally have a diagnosis for what you've been experiencing. And, most importantly, what a relief that it is nothing serious!!!
What a relief! So, so, so happy for you!!!! Relax. smile.
Yay, Cate! So glad to hear you got the best-case scenario. Ever since reading your post yesterday I've been having unreasoning fears of acronym-diseases. I'm not a hypochrondriac at all, but every once in a while the reality hits me about the complete randomness of illness and accident, the lottery of it, and I almost panic to think there's a chance I might not get the long healthy life I'm hoping for. And also, deep sadness for all those whose worries are already a reality. The way you said "My. Neurologist." reminded me of my first trip to the oncologist with my husband when he was diagnosed with skin cancer (all good now). Walking through that door, seeing all the people waiting, knowing everyone there had cancer and so did Jim, I started to panic. And I am a very calm person. It's scary. And I'm so glad for you that your scare is past!
I am so glad to learn that it is not MS or anything like that. I must admit, I had never heard of Benign Fasciculation Syndrome before today.
It's me again Cate. Good it's that. I never say it but I have MS so "my neurologist" hit a chord. Mine is a cold cold guy who usually "just" does brain surgery. I mean, really, he does brain surgery, it is not a metaphor, no BS. No BFS. I know that thing though. Elaine, one of my rare friends here in Nowheretown, has the Bull-Fucking-Shit too and I can't see it, it's just when she told me that I learned. It still does not show. It's not a "nervous tic".
love,
Ann Marie
1954 was a good year for those machines, Cate. Don't speak ill of the technology, now!
Haha. I'm glad it wasn't painful. But the fact that you scream from having your eyebrows waxed convinces me that the nerve conduction must have just been really easy, you can't be too much of a tough chick!!!
Maybe you have really sensitive eyes or really busy eyebrows ;)
xxx
Jess
Thank you, everyone. I appreciate all of your kind words.
Jess, maybe my waxer is no good (although I'm willing to persist--she goes with the natural arch :) I wince so hard while it is being done. Oh, and the answer is yes, to both--sensitive eyes and bushy eyebrows! Think Brooke Shields in the late '70s. (I get my lip waxed, too-are you picturing me as a Big Foot?-and I find that easy)
Ann Marie,
Awww, I had no idea. I've read your posts about the trigeminal neuralgia and I know that that is an excrutiating condition (often related to MS, right?). I can't even imagine what it's like. Thank you for sharing that--meant a lot to me. Oh, and thanks for telling me about Elaine--I'm like that--nothing noticeable unless I point it out (and it's fleeting). HUGS!
Laini,
The waiting rooms are the worst. I felt such conflicted emotions--not wanting to "belong," incredible sympathy, etc. Thanks for sharing your story--I'm glad your husband is doing better! Oh, and well said about the randomness of illness and accident--I kept thinking "why me" and then I thought, "why NOT me" or "why anybody?"
Cate! Hugs to you, and thanks for the hugs! I'm sure it does not show because I see Elaine often and there's no twitching, yet it is something she feels and I understand that. Yes, my TGN - horrible thing - is MS-related but I do not have many symptoms, I try to fight them mentally and with meditating and visualization. I know how tacky this sounds but it helps. I could not walk at all for several months. Then it was like - okay, I can choose. Either I stay at this hospital in a wheelchair or I try to walk. It was hard and I did not walk well at first but now there's nothing to notice, just fatigue I feel sometimes and no much muscles but I am walking and do not even think about it much. I chose to live, in a sense.
It's what Christina from says, "I have MS. It does not have me". She is a writer by the way.
Same with BFS, I think. I know you feel it sometimes but it can become more and more fleeting and more or less disappear. Think - my face is normal and relaxed... and muscle relaxants may help, like Flexeril. It's a savior sometimes. Helps my TGN, the facial muscles are also fasciculating in that. TGN as in Très Grande Nevralgie as I call it. lol. I just made it disappear for a while.
And thanks for sharing this. "My. Neurologist." is no fun until they can name it. as you said. Sounds so serious, I know.
Ann Marie
I did it again! I did not close the tag correctly, sorry! Aaah me.
I'm sorry for the huge link. Snif.
Cate,
Congrats! I'm glad your diagnosis was benign. I have to take my little girl in to see a surgeon this afternoon. She's got a lump in her breast. She's only 15 and I'm a nervous wreck. When it rains, it pours.
Tanya
Ann Marie,
You are inspiring to me. I don't think that your coping mechanisms sound tacky at all. I admire your courage and your spirit, and I am so appreciative that you have been willing to share your experiences with me. THANK YOU! HUGS!
Tanya,
I am praying right now for you and your daughter. I can't imagine how you feel. I'm sure it's harder on you, the waiting--teenagers can be so tough and resilient. It's the rest of us (wiser? jaded?) who realize how unpredictable life is. All of my thoughts are with you. Good luck. XO
Post a Comment
<< Home